Where Courage Takes Flight
I'm Bari Gordon Vapnek, known as Brave Butterfly Bari. Through writing, speaking, and community building, I transform personal adversity into meaningful advocacy for those living with hypoparathyroidism. Together, we rise stronger.
My Story
As a columnist for Hypoparathyroidism News, I believe that adversity is an opportunity for greatness. My life is proof that life is too short to be anything but great.
I'm a proud mother to two incredible children who are my reasons why I fight each day. My daughter Drew, 26, is a Chiropractor at Lake Point Wellness in Acworth, Georgia, and my son Harrison, 24, is a sports director at KALB in Central Louisiana.
Through writing, speaking, and community building, I transform personal adversity into meaningful advocacy for those living with hypoparathyroidism.
My Three Pillars
Columnist, Creator, and Collaborator working together to inspire and advocate
Columnist
Writing powerful columns for Hypoparathyroidism News, sharing my journey and insights to help others feel less isolated in their diagnosis.
Read My Columns
Creator
Creating engaging content and reels that celebrate life, share my story, and inspire others to embrace their journey with courage.
Collaborator
Building community and fostering meaningful connections with others, creating a supportive network for those navigating hypoparathyroidism.
Connect With MeImpact & Reach
Building a stronger community through advocacy and meaningful connections
Community Members
Published Articles
Years of Advocacy
What People Are Saying
Real stories from community members and those inspired by the advocacy work
"Bari's writing has been a lifeline for me. Her honest perspective on living with hypoparathyroidism helped me accept my diagnosis and find strength I didn't know I had."
Sarah M.
Patient Advocate
"Bari's advocacy work has made a real difference in raising awareness about hypoparathyroidism. Her courage and authenticity inspire me every day."
James T.
Community Member
"Through Bari's columns, I found a community of people who truly understand what I'm going through. Her work has changed my perspective on my own journey."
Michelle R.
Hypoparathyroidism Patient
"Bari's storytelling is powerful and relatable. She doesn't just talk about hypoparathyroidism—she shows us how to live boldly despite it."
David K.
Healthcare Professional
"I attended one of Bari's speaking events and left feeling empowered. Her message about turning adversity into advocacy resonates deeply with me."
Lisa P.
Event Attendee
"Bari's collaboration with our organization has brought fresh perspectives and authentic voices to our advocacy efforts. She's a true champion."
Robert C.
Organization Director
Join thousands of community members who have been inspired and empowered
Featured Publications
4 Minutes
June 1, 2019 — A personal reflection and advocacy piece that explores the importance of time in both personal and professional life.
Read ArticleEndings and New Beginnings
January 2020 — An insightful article discussing the transition from personal struggles to becoming an active advocate for those affected by chronic illness.
Read ArticleLatest Columns
My recent writing from Hypoparathyroidism News
Navigating hypopara with the Year of the Horse as my inspiration
February 18, 2026
Read ColumnThe Olympics inspire me to go for gold, despite hypoparathyroidism
February 4, 2026
Read ColumnGoing from patient to caregiver is helping me accept my own needs
November 12, 2025
Read ColumnFeatured Reels
Watch my latest video updates and creative content
2026 Memories & Year in Review
A beautiful collage of my 2026 journey, celebrating gratitude, freedom, and empowerment as I walk into the new year.
Watch Reel
FDA Speech on Hypoparathyroidism
My powerful testimony to the FDA about living with hypoparathyroidism and the importance of patient advocacy in healthcare policy.
Watch Reel
Boston Celtics - Legendary
Celebrating the Boston Celtics and the spirit of being legendary. Sports inspire courage and resilience!
Watch ReelSupport Hypoparathyroidism Research
Your donation directly supports research and advocacy efforts to benefit all those diagnosed with hypoparathyroidism. Together, we can advance understanding and improve lives.
Supports Patient Education
Funds educational materials and resources for newly diagnosed patients
Supports Research
Contributes to clinical research advancing treatment options
Supports Advocacy
Funds community building and policy advocacy initiatives
All donations are secure and support hypoparathyroidism research and advocacy
Partners & Resources
Collaborating with organizations advancing health and wellness
Tralyte Health
Advancing innovative health solutions and patient advocacy through collaborative partnerships.
Learn MoreBionews
Delivering cutting-edge biotechnology news and insights to keep you informed about health innovations.
Visit BionewsHeather Novak
Co-writer at Hypoparathyroidism News, bringing insightful perspectives and authentic voices to hypoparathyroidism advocacy.
Visit WebsiteCommunity Reviews
See what our community members are saying
"Bari's advocacy work has been transformative for our community. Her courage and authenticity inspire us all to speak up for what we believe in."
Maria Rodriguez
Hypoparathyroidism Patient
"Following Bari's journey has helped me understand my own diagnosis better. Her writing is honest, powerful, and deeply compassionate."
Thomas Chen
Community Member
"Bari's FDA testimony was powerful and impactful. She represents our community with such grace and determination."
Dr. Patricia Williams
Healthcare Professional
"Bari's columns have become required reading for our support group. She brings hope and practical wisdom to every piece."
Jennifer Martinez
Support Group Leader
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Get in Touch
Let's connect and build a stronger community together